Get a test
If you've had an NHS test that was negative, wish to get a private overseas test to further investigate your illness and are able to afford your test without a grant from us but without knowing where to start there are 2 main options.
Igenex is an American specialist Lyme testing lab. Igenex has been accredited by the Centers for Medicare and Medicaid Services (CMS) and in addition, it holds California, New York, Maryland, Pennsylvania and Florida licensure since these States require a separate license to perform testing for patients.
They have a number of options including testing for other infections that you can receive from a tick bite alongside Lyme. Many of these extra tests can become quite expensive. To get an Igenex test you will need a doctor to take your blood, sign the request form for the tests and receive the results, Igenex will not post results to a patient alone. If you have an open minded GP they may do this, some private doctors will or there are 2 private clinics in England who will see you for Lyme and carry out a test with Igenex at your request, but be aware you will pay for the consult with these as well as the test.
The three options for just Lyme testing with Igenex are:
1. "Basic panel" - a comprehensive IgG and IgM western blot based on additional strains of bacteria to the NHS test together with an IFA - another sort of test to detect antibodies against the lyme bacteria. This costs $260, around £160.
2. "Complete panel" - as above plus a PCR test on the blood, this looks directly for the DNA of the bacteria, it is very specific but rarely positive as you need the bacteria in your blood that is drawn, but can be an appropriate option for people who are not producing antibodies. This is $475, around £300.
3. "Initial panel" - the IgG and IgM western blot as per the basic panel and PCR on blood as per complete panel, but does not include the IFA. This is $410, around £250.
ArminLabs is a German specialist Lyme testing lab run by Dr Armin Schwarzbach, formerly of Infectolab and the BCA clinic who treat tick-borne diseases. ArminLabs works in association with Gärtner Labs in Ravensburg and so has been accredited by the Deutsche Akkreditierungsstelle GmbH (DAkkS) (German Accreditation Board), all tests are CE-certified for use within the EU.
They also have many test options, including tests for co-infections which are again expensive if a number are carried out. ArminLabs do not require a doctor to sign for the test and will give results directly to the patient and so are an option if you cannot afford to see a private doctor and your GP will not process an Igenex test. You will still require blood to be taken by a phlebotomist or nurse, many GP surgeries or hospitals will offer this for free if you explain the situation.
The options for Lyme tests offered by ArminLabs are:
1. "Acute" - a comprehensive IgG and IgM western blot, similar to that offered by Igenex and an Elispot LTT. The full details on the blot are not available but it seems that this blot compared to Igenex has higher thresholds to be considered positive but uses European bacterial strains instead of just American. The Elispot LTT measures your immune cells' response to Lyme bacteria which can indicate if they have recently been exposed to similar bacteria even without producing antibodies. This is €330, around £240.
2. "Chronic" - as above plus a CD57 test (see note for Igenex). This is €436, around £320.